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National Guideline for ASD Diagnosis - Consultative Workshop Study

Developing a National Guideline for Autism Spectrum Disorder Diagnosis in Australia - Consultative Workshop Study

Aim

The aim of this project is to develop a National Guideline for Autism Spectrum Disorder (ASD) diagnosis in Australia. The goal is that this National Guideline would define a diagnostic process that is rigorous, accessible, client-centred, clinically acceptable, effective, efficient, and equitable for individuals being assessed for autism.

Have Your Say

Online Submission Study - have your say about the most important considerations to address when developing a National Guideline for the diagnosis of autism spectrum disorder in AustraliaThis link will take you away from the ADCET website

Consultative Workshop Study find out about upcoming interactive workshops near you, where community members can share ideas and feedback to help develop the National Guideline for the diagnosis of autism spectrum disorder in Australia. Workshops will be held in most capital cities during March – April 2017. This link will take you away from the ADCET website

Viewpoint Study you are an adolescent or adult on the autism spectrum, or a family member / carer, and you would like to complete a survey about what you think are the most important considerations to address in the National Guideline for the diagnosis of autism spectrum disorder in Australia. This link will take you away from the ADCET website

Keep Informed

If you are interested in receiving updates on the project progress or being invited to participate in future studies as part of this project, please register your interest through the “Keep Informed” section at the bottom of this page. This link will take you away from the ADCET website

About This Project

This National Guideline will be developed by a Research Executive, with additional input from a Steering Committee and regular reviews by a Management Committee.  

Autism CRC will undertake the body of work, under a collaboration with the National Disability Insurance Agency (NDIA).  Autism CRC provides the national capacity to develop and deliver evidence-based outcomes through its unique collaboration with the autism community, research organisations, service providers and government.

Following extensive stakeholder engagement and consultation, a draft National Guideline will be reviewed by the National Disability Insurance Agency to ensure that it is aligned with entry requirements for the National Disability Insurance Scheme (NDIS), providing a consistent and integrated pathway for children and adults diagnosed with autism to access therapy and services under the Scheme.

Research Executive:

  • Professor Andrew Whitehouse (Speech Pathologist)
  • Clinical Associate Professor John Wray (Developmental Paediatrician)
  • Professor Margot Prior (Psychologist)
  • Professor Valsamma Eapen (Child Psychiatrist)
  • Dr Kiah Evans (Occupational Therapist)

The Steering Committee will be comprised of:

  • The Research Executive
  • Nominees from a wide range of bodies representing:
    • Consumers / carers
    • Autism organisations
    • Medical professionals
    • Allied health professionals
    • Education professionals

The project will follow four phases:

Review Existing Guidelines and Research Evidence

A thorough review of existing guidelines and research evidence will be conducted internationally to identify all components that may be included in the process of diagnosing ASD. These components will be evaluated in relation to a range of quality criteria.

Seek Input from Key Stakeholders

Input will be obtained from all key stakeholders through interviews, forums and surveys. This input will allow the most important components for diagnosing ASD to be identified. The Steering Committee will provide additional input into this process.

Develop Draft National Guideline with Key Stakeholders

A draft National Guideline will be developed based on findings from the above two phases. This draft document will be revised in response to feedback from the Steering Committee to ensure the perspectives of all key stakeholders are included.

Prepare Final National Guideline

The draft National Guideline will be reviewed by the National Disability Insurance Agency to ensure that it is aligned with entry requirements for the National Disability Insurance Scheme. Revisions will be made as necessary to produce a final National Guideline for ASD Diagnosis in Australia. The National Guideline for ASD Diagnosis in Australia is due for release in September 2017.

Developing a National Guideline for Autism Spectrum Disorder Diagnosis in Australia - Consultative Workshop Study

Adelaide Thursday 23 March 2017 9:00am-12:00pm Register for Adelaide
Brisbane Wednesday 22 March 2017 9:00am-12:00pm Register for Brisbane
Darwin Friday 24 March 2017 9:00am-12:00pm Register for Darwin
Hobart Thursday 27 April 2017 10.30am - 1.30pm Register for Hobart
Melbourne Wednesday 26 April 2017 9:00am-12:00pm Register for Melbourne
Perth Friday 10 March 2017 9:00am-12:00pm Register for Perth
Sydney Friday 28 April 2017 9:00am-12:00pm Register for Sydney


The following information outlines a research project being conducted by the Cooperative Research Centre for Living with Autism (Autism CRC). The aim of this research project is to develop a national guideline for ASD diagnosis in Australia.

Up to 60 participants per workshop will be given the opportunity to take part in a large-scale conversation on autism diagnosis, by voicing their opinions and sharing their experiences. The aim of these workshops is to gather a broad range of perspectives to inform the development of a consistent guideline for diagnosing autism on a national level. In particular, we are seeking input from:

  • Individuals on the autism spectrum and their caregivers
  • Service providers who are involved before, during or after the ASD diagnostic process
  • Policy makers, regulators and funding bodies

Workshops will be three hours in duration and will be held in capital cities across Australia. The workshop will commence with a brief presentation on the preliminary research findings and guideline structure. Participants will then have the opportunity to discuss different topics in small groups, before coming together for a collective discussion. Light refreshments will be provided during the workshop.

Registrations will open one month before each workshop, however please save the date and time of the workshop in your closest capital city:

Workshop information This link will take you away from the ADCET website

Find out more about the Project. This link will take you away from the ADCET website